I am feeling desperate - the pain in my toes and feet is unbearable. I have had a real problem with my right food my toes have spread and clawed, with a huge lump on the soles of my feet.

Over the past two weeks the same has started happening to my right foot and now my ankle joint is swollen and there is no flexible movement at all in my feet and toes. I am having an awful time just walking. I am still in the workplace but it is really hard just to walk accros the office and I can feel my feet swelling in my shoes. I cant wait to get home and put my feet up. Even then they are throbbing.

In desperation I telephoned my rheumy nurse today, she told me that I last saw my c onsltant in August and it will be sometime before I see him again. Also she said that my last xray on my foot did not show fluid around my ankle - that was a year ago! the notes were wrong because they had the wrong foot (she did admit that there was a discrepancy in my notes).

She suggested I wait a while to see if the pain subsides and the swelling goes down. Meanwhile I am here on the settee my feet are absolutely throbbing, in fact my joints are really painful my arms are aching - I have an appointment at my GP surgery tomorrow morning to have my bloods taken hopefully I shall try to see one of the doctors when I am there - so sorry to be such a moaner tonight but feel I am getting nowhere it is so frustrating.

Thanks for listening

Jane

Hi Jane,

Sorry to hear you are in so much pain, and got no help at all from your rheumy nurse.
Hopefully you'll be able to see a GP tomorrow and then get an emergency appointment with your consultant.
At least you may be able to get some strong painkillers.
Good luck for tomorrow.

Love, Doreen xx

Hi Jane

Just to echo Doreens post, I also feel you need that emergency appointment with the consultant. I am really sorry to hear you are suffering so and trying to hold down a job as well, hope you get that urgent help very soon.

Let us know how things go for you.

Julia xx

Hello Jane,

So sorry to hear that you are in so much pain with your feet. I too get lots of pains
in my feet. My GP has prescribed another pain killer called tramadol and they appear
to help me.

Good luck tomorrow hope you get on well


Rose

Agreed to the posts about the rheumy nurse. I'm lucky as heck - I have a great medical team from my GP right up to my consultant. I just got lucky I suppose.

Don't be afraid to demand. Unfortunately in this world those that shout the loudest get the most. In our situation it's very easy to be overlooked. Good luck.

xx